Compassionate Allowances: Fast-Track Help to Those Who Need It Most

two metal snakes We are committed to processing disability claims as quickly as possible in all cases, but our initial claims process typically takes three to four months. If you suffer from a serious medical condition that prevents you from working, time is of the essence when it comes to receiving a decision on your disability application.

In some cases, we’re able to expedite the application process through our Compassionate Allowances program. Social Security uses Compassionate Allowances to identify people whose medical condition is so severe that they obviously meet our disability standards. Under the Social Security Act, we consider you disabled if you can’t work due to a severe medical condition that is expected to last at least one year, or result in death.

Many of the claims in our Compassionate Allowances Program are approved based on medical confirmation of the diagnosis alone; for example, pancreatic cancer, amyotrophic lateral sclerosis (ALS), and acute leukemia. Acting Commissioner Nancy A. Berryhill said it best: “Social Security is committed — now and in the future – to continue to identify and fast-track diseases that are certain or near-certain to be approved for disability benefits.”

Today, almost 500,000 people with severe disabilities have been approved through this fast-track disability process, which has grown to include a total of 228 conditions. Recently, three new Compassionate Allowances conditions were added to the list: CACH — Vanishing White Matter Disease-Infantile and Childhood Onset Forms, Congenital Myotonic Dystrophy, and Kleefstra Syndrome.

Our Compassionate Allowances program speeds help to people with severe conditions. If you or someone you know has a severe disabling condition, don’t wait. Go to our Compassionate Allowances website for more information about the program, including a list of all the conditions.


91 thoughts on “Compassionate Allowances: Fast-Track Help to Those Who Need It Most

  1. Well i am diabetic is not serious in off to get disability or let me know…! What symptoms it more serious then be suffering with depression and diabetes…!

    • Your question:

      “What symptoms it more serious then be suffering with depression and diabetes…!”

      I think what you meant to say is

      “What symptoms *are more serious *than *to be suffering with depression and diabetes?”

      If that actually is your question, well then here is your answer.

      Acute Leukemia

      Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent

      Adult Non-Hodgkin Lymphoma

      Adult Onset Huntington Disease

      Aicardi-Goutieres Syndrome

      Alexander Disease (ALX) – Neonatal and Infantile

      Allan-Herndon-Dudley Syndrome

      Alobar Holoprosencephaly

      Alpers Disease

      Alpha Mannosidosis – Type II and III

      ALS/Parkinsonism Dementia Complex

      Alstrom Syndrome

      Alveolar Soft Part Sarcoma

      Amegakaryocytic Thrombocytopenia

      Amyotrophic Lateral Sclerosis (ALS)

      Anaplastic Adrenal Cancer – Adult with distant metastases or inoperable, unresectable or recurrent

      Angelman Syndrome


      Aortic Atresia

      Aplastic Anemia

      Astrocytoma – Grade III and IV

      Ataxia Telangiectasia

      Atypical Teratoid/Rhabdoid Tumor

      Batten Disease

      Beta Thalassemia Major

      Bilateral Optic Atrophy- Infantile

      Bilateral Retinoblastoma

      Bladder Cancer – with distant metastases or inoperable or unresectable

      Breast Cancer – with distant metastases or inoperable or unresectable

      Canavan Disease (CD)

      CACH–Vanishing White Matter Disease-Infantile and Childhood Onset Forms (Effective 9/16/2017)

      Carcinoma of Unknown Primary Site

      Cardiac Amyloidosis- AL Type

      Caudal Regression Syndrome – Types III and IV

      Cerebro Oculo Facio Skeletal (COFS) Syndrome

      Cerebrotendinous Xanthomatosis

      Child Lymphoblastic Lymphoma

      Child Lymphoma

      Child Neuroblastoma – with distant metastases or recurrent

      Chondrosarcoma – with multimodal therapy

      Chronic Idiopathic Intestinal Pseudo Obstruction

      Chronic Myelogenous Leukemia (CML) – Blast Phase

      Coffin-Lowry Syndrome

      Congenital Lymphedema

      Congenital Myotonic Dystrophy (Effective 9/16/2017)

      Cornelia de Lange Syndrome – Classic Form

      Corticobasal Degeneration

      Creutzfeldt-Jakob Disease (CJD) – Adult

      Cri du Chat Syndrome

      Degos Disease – Systemic

      DeSanctis Cacchione Syndrome

      Dravet Syndrome

      Early-Onset Alzheimer’s Disease

      Edwards Syndrome (Trisomy 18)

      Eisenmenger Syndrome

      Endometrial Stromal Sarcoma

      Endomyocardial Fibrosis

      Ependymoblastoma (Child Brain Cancer)

      Erdheim Chester Disease

      Esophageal Cancer


      Ewing Sarcoma

      Farber Disease (FD) – Infantile

      Fatal Familial Insomnia

      Fibrodysplasia Ossificans Progressiva

      Follicular Dendritic Cell Sarcoma – metastatic or recurrent

      Friedreichs Ataxia (FRDA)

      Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult

      Fryns Syndrome

      Fucosidosis – Type 1

      Fukuyama Congenital Muscular Dystrophy

      Fulminant Giant Cell Myocarditis

      Galactosialidosis – Early and Late Infantile Types

      Gallbladder Cancer

      Gaucher Disease (GD) – Type 2

      Giant Axonal Neuropathy

      Glioblastoma Multiforme (Brain Cancer)

      Glioma Grade III and IV

      Glutaric Acidemia – Type II

      Head and Neck Cancers – with distant metastasis or inoperable or unresectable

      Heart Transplant Graft Failure

      Heart Transplant Wait List – 1A/1B

      Hemophagocytic Lymphohistiocytosis (HLH) – Familial Type


      Hepatopulmonary Syndrome

      Hepatorenal Syndrome

      Histiocytosis Syndromes

      Hoyeaal-Hreidarsson Syndrome

      Hutchinson-Gilford Progeria Syndrome


      Hypocomplementemic Urticarial Vasculitis Syndrome

      Hypophosphatasia Perinatal (Lethal) and Infantile Onset Types

      Hypoplastic Left Heart Syndrome

      I Cell Disease

      Idiopathic Pulmonary Fibrosis
      Infantile Free Sialic Acid Storage Disease

      Infantile Neuroaxonal Dystrophy (INAD)

      Infantile Neuronal Ceroid Lipofuscinoses

      Inflammatory Breast Cancer (IBC)

      Intracranial Hemangiopericytoma

      Jervell and Lange-Nielsen Syndrome

      Joubert Syndrome

      Junctional Epidermolysis Bullosa – Lethal Type

      Juvenile Onset Huntington Disease

      Kidney Cancer – inoperable or unresectable

      Kleefstra Syndrome (Effective 9/16/2017)

      Krabbe Disease (KD) – Infantile

      Kufs Disease – Type A and B

      Large Intestine Cancer – with distant metastasis or inoperable, unresectable or recurrent>

      Late Infantile Neuronal Ceroid Lipofuscinoses

      Leigh’s Disease


      Leptomeningeal Carcinomatosis

      Lesch-Nyhan Syndrome (LNS)

      Lewy Body Dementia

      Liposarcoma – metastatic or recurrent


      Liver Cancer

      Lowe Syndrome

      Lymphomatoid Granulomatosis – Grade III

      Malignant Brain Stem Gliomas – Childhood

      Malignant Ectomesenchymoma

      Malignant Gastrointestinal Stromal Tumor

      Malignant Germ Cell Tumor

      Malignant Multiple Sclerosis

      Malignant Renal Rhabdoid Tumor

      Mantle Cell Lymphoma (MCL)

      Maple Syrup Urine Disease

      Marshall-Smith Syndrome

      Mastocytosis – Type IV

      MECP2 Duplication Syndrome

      Medulloblastoma – with metastases

      Menkes Disease – Classic or Infantile Onset Form

      Merkel Cell Carcinoma – with metastases

      Merosin Deficient Congenital Muscular Dystrophy

      Metachromatic Leukodystrophy (MLD) – Late Infantile

      Mitral Valve Atresia

      Mixed Dementias

      MPS I, formerly known as Hurler Syndrome

      MPS II, formerly known as Hunter Syndrome

      MPS III, formerly known as Sanfilippo Syndrome

      Mucosal Malignant Melanoma

      Multicentric Castleman Disease

      Multiple System Atrophy

      Myoclonic Epilepsy with Ragged Red Fibers Syndrome

      Neonatal Adrenoleukodystrophy

      Nephrogenic Systemic Fibrosis

      Neurodegeneration with Brain Iron Accumulation – Types 1 and 2

      NFU-1 Mitochondrial Disease

      Niemann-Pick Disease (NPD) – Type A

      Niemann-Pick Disease-Type C

      Nonketotic Hyperglycinemia

      Non-Small Cell Lung Cancer

      Obliterative Bronchiolitis

      Ohtahara Syndrome

      Oligodendroglioma Brain Cancer- Grade III

      Ornithine Transcarbamylase (OTC) Deficiency

      Orthochromatic Leukodystrophy with Pigmented Glia

      Osteogenesis Imperfecta (OI) – Type II

      Osteosarcoma, formerly known as Bone Cancer – with distant metastases or inoperable or unresectable

      Ovarian Cancer – with distant metastases or inoperable or unresectable

      Pallister-Killian Syndrome

      Pancreatic Cancer

      Paraneoplastic Pemphigus

      Patau Syndrome (Trisomy 13)

      Pearson Syndrome

      Pelizaeus-Merzbacher Disease-Classic Form

      Pelizaeus-Merzbacher Disease-Connatal Form

      Peripheral Nerve Cancer – metastatic or recurrent

      Peritoneal Mesothelioma

      Peritoneal Mucinous Carcinomatosis

      Perry Syndrome

      Phelan-McDermid Syndrome

      Pleural Mesothelioma

      Pompe Disease – Infantile

      Primary Central Nervous System Lymphoma

      Primary Effusion Lymphoma

      Primary Progressive Aphasia

      Progressive Bulbar Palsy

      Progressive Multifocal Leukoencephalopathy

      Progressive Supranuclear Palsy

      Prostate Cancer – Hormone Refractory Disease – or with visceral metastases

      Pulmonary Atresia

      Pulmonary Kaposi Sarcoma

      Retinopathy of Prematurity – Stage V

      Rett (RTT) Syndrome

      Revesz Syndrome


      Rhizomelic Chondrodysplasia Punctata

      Roberts Syndrome

      Salivary Cancers

      Sandhoff Disease

      Schindler Disease – Type 1

      Seckel Syndrome

      Severe Combined Immunodeficiency – Childhood

      Single Ventricle
      Sinonasal Cancer

      Sjogren-Larsson Syndrome

      Skin Malignant Melanoma with Metastases

      Small Cell Cancer (Large Intestine, Prostate or Thymus)

      Small Cell Cancer of the Female Genital Tract

      Small Cell Lung Cancer

      Small Intestine Cancer – with distant metastases or inoperable, unresectable or recurrent

      Smith Lemli Opitz Syndrome

      Soft Tissue Sarcoma – with distant metastases or recurrent

      Spinal Muscular Atrophy (SMA) – Types 0 and 1

      Spinal Nerve Root Cancer-metastatic or recurrent

      Spinocerebellar Ataxia

      Stiff Person Syndrome

      Stomach Cancer – with distant metastases or inoperable, unresectable or recurrent

      Subacute Sclerosing Panencephalitis

      Tabes Dorsalis

      Tay Sachs Disease – Infantile Type

      Thanatophoric Dysplasia – Type 1

      Thyroid Cancer

      Transplant Coronary Artery Vasculopathy

      Tricuspid Atresia

      Ullrich Congenital Muscular Dystrophy

      Ureter Cancer – with distant metastases or inoperable, unresectable or recurrent

      Usher Syndrome – Type I

      Ventricular Assist Device Recipient – Left, Right, or Biventricular

      Walker Warburg Syndrome

      Wolf-Hirschhorn Syndrome

      Wolman Disease

      X-Linked Lymphoproliferative Disease

      X-Linked Myotubular Myopathy

      Xeroderma Pigmentosum

      Zellweger Syndrome

      These diseases and conditions are on the Social Security’s compassionate allowance list. There is a direct link listed in the article as well.

      Since you obviously missed it, here is the direct link again, to ALL of Social Security’s compassionate allowance conditions.

      I have Type 2 diabetes and depression and MUCH more ailments and I still work.

      I hope this has helped answer your question.

      • My husband has shy- draper sydrome,he was dignosed by dr. James Hurley Red River Army Drs.put him out on60/% disablity in 1997 He has not work since,now they want to cut his social secuity check from 5506.to355. Amo. He needs the506.00 to buy his 3 inhalers he is on from being a welder for the tanks that went to irack also he has to buy 19 prciptions a mo we have insurance but have to pay the Co pay,we are hurting like many Americans are,this disease he has is uncut able they don’t have nothing to stop it.along with it he has Parkinson, altimers,high blood pressure & copd.we ask for help,I don’t have a computer& I have tried &tried to reach social security. I am his wife,he cannot read or write.Gail Sorrell 11Ashlee blvd. Nash,texas 755 69 ph#9037016913

        • We are sorry to hear about your husband’s medical condition. Unfortunately, and because of security reasons we do not have access to personal records in this blog.
          If your husband needs help managing his Social Security benefits, you may be interested in applying to become your husband’s representative payee. As a representative payee, you will be able to talk with us and have access to your husband’s records and update his account information.
          To become your husband’s representative payee, you will need to visit your local Social Security office for a face-to-face interview. A statement from his doctor would be helpful. The statement should say that your husband is not able to -mentally and physically- manage his Social Security benefits and identify you as the person responsible to keep his affairs in order.
          Please read our publication: A Guide For Representative Payees for more information. If you have specific questions, or to make an appointment, please call 1-800-772-1213. Representatives are available Monday through Friday, between 7 a.m. to 7 p.m. Generally, you’ll have a shorter wait time if you call later in the week. Thanks.

  2. Not easy to get Job I get social security have right to abuse my that not cool make for other that’s true pay bills and rent to put food on tab

  3. I am Canadian..

    Does this apply to me?

    If not please tell me,.

    Can I please be an American?

    Canadian system has utterly failed me this far from justice to child protection , labor laws, supports, access to healthcare both medication and treatments, transportation, criminal defence, immigration, licensing insurances and registration, mortgage fraud, division of marital property, estate planning, victim services , addictions and mental health, income tax services, provincial & federal benefits, access to personal information protection, enforcement of court orders, and human and civil rights.

    Embarrassing !

    I have a great voice… Sadly I don’t think I’m being heard here.

  4. I”m thinking that once DJT finds out that something along the lines of charitable giving exist within SSA, that he”‘ll associate it with Barry O and immensely squash it.

    • Don’t worry about Yrump…Congress is already doing it whilst we’re distracted by the Twitter rants…It’s all included in that “big, beautiful ‘tax cut'” – what did people think was going to be CUT to pay for them?? Cutting SSDI by 20% for those few already on it whom they deem “disabled enough” not to work, and & REQUIRING everyone else receiving it to work; eliminating Medicare via the block grant idea…yes, the states will each receive a fixed amount (set by Congress annually) to provide as a tax credit to each Medicare recipient on the purchase of a policy on the “open market” – we all should know how well that’ll work, eh? That’s not even 1 of dozens of cuts to programs meant for elderly & disabled that will literally kill most of us relatively quickly. Better pray, hope, wish, or whatever you believe in that this tax plan is NOT passed. Better yet, call & write your Congresspersons in House and Senate & tell them NO NO NO!!! Think I’m just being political? Read the actual Bill for yourself (NOT what newscasters or politicians say) at You’ll be horrified.

      • Boy, the libs sure can make up things. None of what you mentioned is being seriously considered. So, please write your Congressmen, he’s in for a good laugh and he’s looking for more fools to donate to his campaign.

  5. We are family of seven depends.
    Two of my children going to college
    Three children in high school.
    I receive a retirement benefits seven hundred twenty three dollars a month.
    It’s not enough to pay the rent.

  6. My friend Cheryl Buterbaugh has applied a year ago. She is due disability ssi and or widows benefits as of a year ago. Attorney seems to be dragging his feet

  7. I became disabled in 2004 when I was 18 I became a disabled child under a disabled parent because of my dad as well is disabled when my mom died in 2010 they switched me souviours benefits. But here recently my condition has worsen and now I am just not making it can I refile for my disability and my SSI and if it doesn’t go thru will that affect my souviours benefits if I’m not approved for my disability because I was disabled before age 22 I have my paperwork from y’all on my original claim that states when. Became disabled

    • Hi Michelle. Generally, survivor’s benefits are paid at a higher rate. Sometimes, a person may be eligible to more than one benefit at the same time. For example, you may be eligible for “disabled adult child” on your dad’s record and also qualify for survivor’s benefits on your mother’s record. Under current law, a person’s benefit amount can never exceed the highest single benefit amount to which that person is entitled. While is possible for a person to be eligible to more than one benefit at the same time, we are only going to pay the highest benefit amount from either records. To see if you’re eligible for a higher benefit than what you’re receiving now and to discuss your options, contact us at 1-800-772-1213 between 7 a.m. and 7 p.m. Monday through Friday or visit your local Social security office. Thanks.

      • Be ready to wait for hours to speak to someone. Just like you wait for years to get approved for benefits even after working and paying FICA for 30+ years. Your system is broken Ray and it’s so corrupt that SS makes people wait for over 3 years to get what they had deducted from their paychecks every week.

  8. My wife has diabetes and most recently has had a detached retina in her right (dominant) eye. Her sight will be impaired for a long time, particularly here depth perception.
    She is 64 and we wonder if she would be eligible for Compassionate Allowance / Disability adjustment to her monthly benefit?

    • The condition described is not on the compassionate list. Have her apply for disability and she might be approved. Do not post personal information in an open blog, identities can be stolen.

    • Hi James, we do not base an individual’s benefit amount on the severity of their disability. We base it on their average lifetime earnings before they became disabled under our rules. Compassionate Allowances are a way to quickly identify diseases and other medical conditions that, by definition, meet Social Security’s standards for disability benefits. In those cases, we’re able to expedite the application process through our Compassionate Allowances program. Social Security uses Compassionate Allowances to identify people whose medical condition is so severe that they obviously meet our disability standards. Thanks!

  9. I will apply for this but I am sure (like you have done in the past) will deny me benefits. I really have a hard time believing anything with the words “social security” and “compassion” used in the same sentence. I find it more of a reality that you will use special “rules” to justify your denial yet again.

    Your program states “Under the Social Security Act, we consider you disabled if you can’t work due to a severe medical condition that is expected to last at least one year, or result in death”. I have both and have applied before.

    I am 46 years old, have been disabled since birth, I have cerebral palsy, I have been unable to find any gainful employment for most of my entire life, no one will hire me because I am physically disabled, you do not get any points with SS if you do not work. I have applied with SS before and been turned down. I have never received ONE RED CENT of money from social security, ever! Sorry to be so exact, but that has been my real world experience dealing with the social security administration.

    • If you have NEVER been gainfully employed you should have applied as a disabled child under a parents record. You do not meet BOTH conditions, if you’ve been severely disabled since birth by a condition that would result in death, you’re still alive.

      • AKA,
        Are you sggesting that a person can’t meet both requirements of having a condition/combined conditions that is so severe it not only prevents them from working and is expected to last at least a year but will also result in death?? There are many horrific diseases that people develop that do just that! Once you get one disorder or disease your genetic mutations have free reign, and you start obtaining a whole host of other conditions that compound and complicate the initial disease. Please do not ASSUME a person doesn’t meet both criteria simply because you are not knowledgeable in all things related to a specific set or group of diseases. Some conditions result in long painful suffering and Death is simply a matter of time, especially if there is no cure or approved treatments available. Perhaps the SSA should change the wording if they want to clarify a specific time frame. However your dismissal of Tammy’s post not appreciated.

  10. So many people receiving disability benefits that are able to work. Brag about not working and working for cash money on the side. Who investigates these abusers?

    • Thank you for contacting us. Social Security takes allegations of fraud very seriously. If you suspect or know of someone committing fraud against Social Security, report it. Reporting is easy, safe and secure.

    • Who is to say who is able to work? Do you know each and everything these disabled people live with everyday? No, I thought so. Don’t pass judgement on something you know nothing about. We have no idea what people live with everyday and if they are able to make a substantial living. Your not God.

  11. The two peoples I am considering compassionate allowances for are orphans and pyromaniacs.

    1. SSI, for an estimated 100,000 orphans growing up in federally unfunded orphanages in the United States. Up to 1/3 for the orphanage and 2/3 for candy, car and college fund. Disability, SSI or DI, for 400,000 working age adult orphans, who lost both their parents before they turned 18. Just use the high-cost scenario for disability spending like SSA has to do anyway to afford everyone’s 3% COLA.

    2. How much wood, could a wood chuck, chuck, if a wood chuck, could chuck wood? Please chuck in the national forests to the national park services director under 54USC100101. Fire the arsons!!! An estimated 33,000 USDA Forest Service employees and related arson contractors are not eligible or reassignment because they are pyromaniacs, and may or may not be entitled to federal disability-retirement

    To end poverty by 2020

    A BILL

    (a) To amend the federal minimum wage from $7.25 an hour 2009-2017 to ‘$7.50 in 2018 and 3% more every year thereafter.’ under 29USC§206(a)(1)(D).

    (b) To provide 14 weeks of (unemployment compensation) paid Maternity Protection under ILO Convention 183 (2000).

    (c) To amend the 1.8% DI tax rate starting January 1, 2019 in Sec. 201(b)(1)(T) of the Social Security Act under 42USC§401(b)(1)(T) to either (c-1) 2.1% DI tax, or (c-2) 2.0% DI tax if OASI pays $240 billion including 2.5% interest in assets for CY09-CY15 to replicate to the extent possible revenue that would have been received if the OASDI tax had been properly adjusted by Public Law 112-96.

    (d) To replace the Adjustment of the contribution and benefit base under Section 230 of the Social Security Act 42USC§430 with ‘There is created in the Treasury a Supplemental Security Income Trust Fund.’

    (d-1) To tax the rich the full 12.4% Old Age Survivor and Disability Insurance (OASDI) Federal Income Contribution Act (FICA) on all their income to pay 16-24 million children growing up poor SSI benefits CY18 and end poverty by 2020.

    (e) To end benefit attrition with a 3% Cost of Living Adjustment (COLA) rule every year inflation continues to run about 2.7% and the Trust Fund Ratio is greater than 20% under Sec. 215(i) of the Social Security Act 42USC§415(i). To make an exception to the rule to pay $777 mo. SSI a 5.7% COLA is needed from CY17, a 2.7% COLA CY18 followed by 3% COLA to $777 SSI CY19 and 3% COLA every year thereafter.

    Be it enacted in the House and Senate Assembled

  12. Thanks. In my case (some years ago), this took a little over a year, including time for the appeals process. At that time, initial applications were routinely rejected, making it necessary to go through the appeals process. As of early 2016, I read that the entire process, from date of application to (if accepted) receipt of a disability check, had reached up to three years.

  13. social security administration Dated 11/06/2017
    Subject > Compassionate Allowances to date i work for truth for law ”
    2012/2017 to date “sri lanka police hide now i am
    stand up with law/unhcr/fbi/interpol /slnpc/law and order
    to pay my all up date “legal civil rights ”
    so all of you can understand what type of administration work around the world ”
    who work with us too that there was beautiful face but beauty is not “right ;law ”
    right law is “where ever you work ,that the county
    social scurrility civil rights 5% daily need to update
    under the (example “name “Mr.x” of civil society name is legally allowed to have to his/her civil rights ”
    that proper duties well done by FBI/CIA ‘at USA
    World bank +unhcr/world bank civil society rights am in
    my all funds invested by unhcr “accountability is
    fully responsibility .”am happy too”
    Sri lanka police+NPC+Law and order has to pay
    for my rights no excuses for me as 55 age passed.
    THIS IS YOU CALL “Social security administration ”
    my all hearty deep congrats! to social security government ‘
    well being a member
    I am yours sincerely
    Millennial hospitality leader
    Mr.Egodage D.R Abayasekara/world wide
    cc “UNHCR/ICJ.

  14. My wife requested disability information about filing. She was told that there was so much paper work involved that it was usually a waste of time. So, she never bothered to file. She is disabled due to heart problems as well as neuropathy. She is 82 years old now so I would assume that she is beyond the feasibility of submitting a claim. My main question is, when does social security disability stop? Does it stop when a person applies for Medicare? If so, are there other benefits for disabled personnel in this situation?

    • Thank you for your question, Mr. Atkinson. Social Security disability benefits automatically change to retirement benefits when disability beneficiaries attain their full retirement age. If a person has reached his or her full retirement age and is receiving Social Security retirement, they will not be eligible for disability benefits. Some individuals may also be eligible to receive social services from the state in which they live. These services include Medicaid, free meals, housekeeping help, transportation or help with other problems. You can get information about services in your area from your state or local social services office. Or you can visit the U. S. Department of Health and Human Services (HHS) web page for more information. We hope this helps!

  15. ii am currently was on disability with a compassionate allowance diagnosis, and at my appeal hearing (because my review was extended 3 years then denied) i told them i have nonhodgkins lymphoma cancer, and i was kicked off disability, for not having a disabling disability…and mine its metasized to the bone, another compassionate allowance diagnosis (bone cancer) but im now homeless, and no money one month to christmas, with cancer, rediagnosed… thanks

  16. Dear Deputy Commissioner Borland,
    Thank you for posting about this topic. I have multiple questions that never get answered involving the “CAL”. I have attempted to get “Dercums Disease” (ADIPOSIS DOLOROSA) – an “ultra-rare”, extremely painful, progressive, and degenerative “orphan disease” – on the CAL registry. There never seems to be any more public meetings, or, enough advanced notice to those of us interested in commenting on policy. Has there been any discussion about creating a secondary “RARE DISEASE COMPASSIONATE ALLOWANCES LIST” for the more destructive and rare conditions, disorders, syndromes and diseases??
    In a state like Pennsylvania if you apply for SSD/SSDI/SSI and are denied, you have to wait and continue to be out of work for a MINIMUM of one year+ before you can even get on the waiting list to see a judge for a hearing. That’s in addition to the 3-6 months it takes to process your initial claim. There are many other medical and financial concerns that are just not accounted for when dealing with rare diseases and while cases are currently determined on “a case by case” basis, this process is not only outdated and destructive, it ends up costing all parties a great deal more money than is intended.
    I have not met anyone who is happy to be in the position of losing their mobility. They work untill it’s physically impossible and then seem to get penalized for giving it their all in a desperate attempt to defy becoming a statistic. What is being done to upgrade the current process for incurable rare diseases that are not on the CAL purely due to the fact that they are so rare that the system (offices and judges) has little and outdated, inaccurate information about them? With more than 7000 rare dieases, how can we educate and legislate the system in order to save taxpayers money while at the same time helping those who really do need it most?
    Thank you for your time and response.

  17. My claim for disability has been approved by Judge Joseph Liken on 10-27-2017. I would like to know how long it will be before I start receiving my benefits.

    • I was approved in August 2017 and am still waiting for my payments to be processed. Every time I call I get told it is still being processed. So I guess that means we are all supposed to hurry up and die so they do not have to pay out any SSDI benefits.

      • Hi James. The length of time it takes to begin receiving payments after receiving a favorable decision in a hearing varies. Approved claims are randomly selected for a quality assurance review of the decision. We care about our customers and are working as fast as we can. For security reasons, we do not have access to information about your account in this venue.
        Please continue working with your local office, and if necessary, ask to speak with the manager to see how we can help to expedite the process of your claim. Thanks.

        • Hello Ray, Thank you for your response. I have asked on several occasions to speak to a manager. To date none have been available when I am able to get through. Asked to be called back, and the same response. NONE. It is very difficult to believe you (SSA) are here for us. That you hide behind “security” to not address issues or questions is shallow at best. You can easily reply to “security” sensitive questions or issues in the message center of “my Social Security. That is unless your internal system is also rife with insecurity. Or you could send an email and ask to be called at a phone number that actually has a person attached to it and not voice mail. But then I suppose I am expecting too much from my government and the men and women who work for SSA.

  18. Good day,
    Hopefully you can answer a question for me.i have been trying for almost 2 yrs to get my disability. I am awaiting my hearing, I have just received my VA disability, of 10%,I broke my back on July 5 2017. Just had back surgery and King’s daughters hospital got my back at 50%.i have a psychiatrist at the VA hospital, he acknowledges that with my mental compassity, I am not able to work. I wanted to no if social security can expedite my claim. Thank you for taking time to read this.hoping for a return message.

    • Bradley, the length of time it takes to get a hearing could vary from case to case. We attempt to resolve all claims promptly, but there may be delays due to the volume of pending appeals in your area. The good news is that we are trying to conduct many of our hearings through video teleconferencing (VTC) to speed up the process. Visit our “Hearing And Appeals” web page for more information, and continue working with your local hearing office on specific questions about your case. Thanks!

  19. I am DISGUSTED!!!! I have been working with multiple people via the phone and two people in the local Broward County Office. I was receiving Workers Compansation until May 2017. It was discountinued. I meet with Shawn at the local office with documentation and he required additional information that he told me once received he would have his manager do a manager to manager phone call with the processing center to expidite the process of getting my SSDI up to its full amount. Also he would call me for a update. That was July non of which happened. The information he requested was faxed to him on August 10th and remaind there until he finally returned my phone call after I left several messages on August 22nd. Again told same manager to manager and update song and dance. Again in September after multiple calls to find out that it’s still processing in the processing center he returned a call to me where I expressed my frustration because he had initially told me that it would be processed within 30-60 days. I had requested that he email my landlord as due to this situation I am trying to face eviction he took the time to write down their email address as well as mine so I could be ccd on the email and he took her telephone number. I gave it a week no email. So I proceeded to again go to the office and request a manager to find out what the delay was only to find out that unbenost to Shawn there was a release form that I was supposed to sign and a specific form for the insurance company to fill out. The manager was going to call the insurance company directly fax it to them immediately so they could return it and again with the manager to manager phone call oh and SS does not do emails other than within the offices. At that point the manager was going to call me back and I find out today that the person that handles my case at the insurance company has been out since October 1st. Wouldn’t that manager have known that based on the call she told me she was going to personally make. Now I know why no update from the manager. At this point back to SS office I go with much frustration about being told things would be done and nothing gets followed through on. I’m one more visit away from filing and attempting to make an appointment with the Commissioner of Social Security. All the years that you work and the money certainly comes directly out of our paycheck but try and get it in a reasonable time frame when you are really in a bind and good luck, as this has been going on since July.

    • We apologize for the inconveniences, Angel. For security reasons, we do not have access to personal information in this venue. In this situation, it is best to continue working directly with the local Social security office. To submit your comment, complaint or suggestion, you can write to us or send us an email message. Thanks.

  20. Yes I’ve have mediim needin.
    Bills to pay and really I got yave the money cang yiuvhehelp megary

    cal bills that we can’t he we garydarc

  21. A us citizen has died recently in USA. His native country was Pakistan and he had got usa citizenship. His spouse and child have also recently got green cards. they ve shifted back to Pakistan with dead body of the deceased. Please inform that how much facilities and incentives could the widower and her 4 years son get if they want to reside in USA or in Pakistan?

    • We are sorry for your loss. Typically, the funeral director notifies us of an individual’s passing by contacting the local Social Security office. To verify this information was reported, and to see if family members are eligible for survivor’s benefits, the widow can call our toll free number at 1-800-772-1213. Representatives are available Monday through Friday, between 7 a.m. and 7 p.m. Or she can contact the local Social Security office directly.
      Individuals living outside the United States may still be eligible for Social Security benefits. For assistance related to Social Security benefits, they must contact their local U.S. embassy or consulate. We hope this information helps.

  22. I been suffering with PDSD and anxiety disorder and severe manic depression plus and continues seeing medical Dr’s for surgery’s

  23. The is enough to make me want to scream when I applied for disability, your the messy system of Texas dragged my claim out. MY DISABILITIES then as now, were defects from BIRTH. YET, the TEXAS messy system ignores you, UNLESS you have an ATTORNEY at the time. WHY THE HELL, should anyone need the assistance of, and the pay for one, when they can present MEDICAL PROOF of their claim? Our governor’s disability was the result of his actions. Yet, he is qualified as disabled.
    My claim was ignored, until AFTER I HAD APPLIED FOR EARLY RETIREMENT at age 62, THEN I received a decision that stated of course that I NOW WASN’T ELIGIBLE.
    NO wonder GOD has slammed our state so hard. There is sooo much GREED and corruption here. Sad, sad, sad.

  24. Does someone found disabled because he/she suffers from a condition/disorder on the Compassionate Allowance list still have to receive SSDI cash benefits before becoming entitled to Medicare coverage? If so, how is someone that ill supposed to obtain medical treatment or pallative care?

      • Yes, Azure, individuals can become eligible for Medicare benefits after they receive disability benefits for 24 months. We start counting the 24 months from the month they were entitled to receive disability, not the month when you received your first check. You may want to check and see if you are eligible to receive social services from the state in which you live. These services include Medicaid, which may help pay for medication that Medicare does not cover. You can get information about services in your area from your local social services office. Or you can visit the U.S. Department of Health and Human Services (HHS) web page for more information. We hope this information helps.

  25. I was denied Disability in 2013 not because I did not grid out but after I was told I could remove the attorneys without it affecting the Judges decision, the Judge sent it back to be retyped because he “did not like the wording”. New attorney filed appeal submitting medical evidence proving I meet the listing for C.O.P.D. which the orig. attorneys did not submit. After waiting over a yr. I complained to then Sen. Sessions who requested a thorough investigation on my behalf. Appeals council attorney then closed the appeal, which was critical new med. evidence without cause. Now it is 2017 and Judge claims I only qualify for SSI effective Aug. 24, 2017 and Montgomery AL rep claims SSA website is wrong they do not issue emergency adv. payment for being homeless, needing medical treatment and medication. Why are Social Security representatives allowed to Discriminate in retaliation for complaints and still have salaries, and benefits while American Citizen who worked 38 yrs. is being denied what they worked for and qualify for? I have supporting documentation proving discrimination including new Judge ordering new Pulmonary Function test 120 days after hearing and not presenting it before rendering his decision and as of the end of Nov. Montgomery office claimed it still had not been filmed denying me my right to a copy. This needs to be stopped and I not only want my full backpay of $1570/mo from May, 2011 till present but punitive damages for these illegal actions by SSA personnel.

    • Compassionate Allowances?? I became disabled in 2013 after spinal surgery left me unable to work. I applied for SSDI was denied, appealed and was sent to see SS approved doctors. They determined I was unable to work, yet my appeal was denied. Appealed again and waited for over 2 years for a hearing. After hearing I waited almost 3 more months for a decision. Received a fully favorable decision in August 2017, telling me to contact SSA after 60 more days if I had not heard form SSA. Well I have not heard form SSA. I have been calling and sending emails and no one has replied to any of my emails, and when I do get a call through I am told it is being processed. I know you require someones’ disability to last for more than a year or end in death. I feel the attitude and policy of SSA is to just drag it out in hopes we all die so no SSDI benefits ever need to be paid. Seriously how long does it take for payments to be processed once disability has been approved?? I read in the Washington Post a while back over 18000 people have died in the last 2 years waiting to either be approved or start receiving benefit payments. I DO NOT WANT TO BE ONE OF THESE PEOPLE. Hoping and praying you all can actually do your jobs and process a persons payments.

  26. I am 81 years and have been working and receiving social security benefits. February, 2017, I became seriously ill and have been on Disability since. This November 2017, my Company laid me off. My question is can I receive DI benefits. I am unable to continue working and doing the job I use to do. I am not able to collection Unemployment until I am off Disability, and I do not know if and when that will be. Is there a cutoff date to apply for Unemployment? Disability office said to contact Social Security to see if I qualify for DI. Do I?

    • Social Security disability benefits automatically change to retirement benefits when disability beneficiaries attain their full retirement age. At age 81, you have already reached your full retirement age, therefore, you are no longer eligible for Social Security disability benefits.
      Also, under the direction of the United States Department of Labor, unemployment benefits are administered by each state. We hope this information helps!

  27. Can you help us? My husband applied for disability on 11/6/17 on a Fast Track per the case worker as he has multiple myeloma. I cannot get a case worker to call us back with the status of his claim. He is not able to work and has had multiple surgeries and in and out of the hospital the last 3 months. Please advise.

    • Hello Valerie, If your husband applied for Social Security or Supplemental Security Income benefits, he can log in or create a my Social Security account to check the status of his application online.
      If he is unable to check his application status online, he can call us at 1-800-772-1213 (TTY 1-800-325-0778), Monday through Friday from 7 a.m. to 7 p.m.

  28. Im still waiting going on 9 months for disability payments and i have end stage kidney failure, im blind and have cardiac failure so im guessing that wasn’t enough to FasTrack my application because Im broke and can barely afford to pay people to drive me to Dialysis.

  29. my husband is 56 years old has stage 4 Lung cancer was approved for SS but was then told there is a 5 month waiting period with no back pay before he could even get his first check. also no insurance for 2 years. what are we suppose to live on. He has worked hard all his life just to be told your approved but we cant help you for 5 months that is just plain wrong

  30. My husband has Acute Leukemia. He got approved for disability and the letter said they would help him find a job. That is ridicules and we need help with medical and anything else he would qualify for. I am working two jobs and taking care of him. We need some help please.

  31. my mom is 80 with parkinsons she is currently hospitalized for a broken hip but will be returning home soon . if i have to quit my job to care for her . is there any compensation i can receive for being her care provider

    • Thank you for your question, Kimberly. We do not pay caregivers. However, you may be eligible for other benefits through your state’s social services office. These services can include free meals, housekeeping help, transportation, or help with other situations. To get information about services in your area and to find out if you qualify, you will need to contact your state or local social services office. Or you may visit the U. S. Department of Health and Human Services (HHS) web page for more information. We hope this information helps!

  32. I tried to get ask I was fighting my Ssi science 2010 but it doesn’t go threw I applied for chronic back pain. But I’m also skisofrinia bipolar ll and I have major depression but never applied for it I also get isolated in my tent because I’m homeless and I think my uncle is looking for me to do what he did to me when I was from 3yrs old to 9 until my mother took us to Los Angles

  33. In 2008 I had AML LEUKEMIA but was not diagnosed until february 2009.Why did my attorney tell me to waive my backpay?I lost around $30,000 and it still haunts me to this day.I was homeless and lived in my car for 8 months,then in the woods in a small camper with no electric or water for 6 months.I am now in HUD low income housing.I get $777.00 a month SSA AND SSI COMBINED and $37.00 food stamps.I am a 63 year old female and can barely get by on my own.I now have Parypheal Vascular Disease in both legs.Is there any way to retreive the packpay that I waived because of bad advice from my lawyer while I had cancer?

  34. My brother who is 48 has recently been diagnosed with FRONTOTEMPORAL DEMENTIA. It has been a roller coaster for 2 years or more. My dad has power of attorney. Does my dad apply for SSI the regular way or is there a better way to apply? My brother is in a dementia facility unable to apply for himself.

    • We are sorry to hear of your brother’s medical problems, Marni.
      We pay disability benefits through two programs: the Social Security Disability Insurance program (SSDI) and the Supplemental Security Income (SSI).
      Your father could help your brother apply for disability benefits. He can also apply to be your brother’s Representative Payee.
      A representative payee is different than having “Power of Attorney”. As a representative payee, it will make it easier for your father in the future to update information for your brother (the beneficiary). When friends or family are not able to serve as payees, Social Security looks for qualified organizations to be representative payees. In this case, the nursing facility may consider applying to be the representative payee. The social worker at the facility may be able to assist with the application for disability benefits as well.
      Please consider talking with the nursing facility manager or administrator about this important issue, they will contact us if they have specific questions or to understand the facility’s responsibilities.
      Please call our toll free number at 1-800-772-1213 for further assistance. Representatives are available Monday through Friday, between 7 a.m. and 7 p.m. Generally you will experience a shorter wait time if you call later during the day or later in the week. We hope this information helps.

  35. I am 73 years old with knee problems: Social security and my pension combined barely cover our rent. I request some supplemental income to cover my living expenses

    • Thanks for your comments, Mohammad. Supplemental Security Income (SSI) is a needs-based program that pays benefits to people age 65 and older and disabled adults and children with limited income and resources. The amount of an SSI monthly benefit is based on the income, resources and living arrangements available to the person who receives SSI. Individuals age 65 or older, will need to complete their Supplemental Security Information (SSI) application at their local Social Security office. Please call our toll free number at 1-800-772-1213 to make an appointment. Representatives are available Monday through Friday between 7 a.m. and 7 p.m. We hope this helps.

  36. Compassionate Allowances are a way to quickly identify diseases and other medical conditions that, by definition, meet Social Security’s standards for disability benefits. These conditions primarily include certain cancers, adult brain disorders, and a number of rare disorders that affect children. The CAL initiative helps us reduce waiting time to reach a disability determination for individuals with the most serious disabilities.В  The Compassionate Allowances program identifies claims where the applicant s disease or condition clearly meets Social Security s statutory standard for disability. By incorporating cutting-edge technology, the agency can easily identify potential Compassionate Allowances to quickly make decisions.В  Social Security Administration (SSA) uses the same rules to evaluate CAL conditions when evaluating both Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) programs.
    By the way! The best essay writing service –
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  37. My SSI application was deemed “expedited upload”. However, I did not receive SSI benefits until after I was approved through a hearing. Later, I was approved for benefits as of the date of my SSI application; although, I was approved through the hearing beginning a year prior to my SSI application date. But, my benefits (back pay) was only approved as if my SSI application. Given, my SSI application was deemed “expedited upload” would this make allowance for benefits beginning the date the judge determined me disabled?

    • Thank you for contacting us, Eleanor. Unfortunately, and because of security reasons, we do not have access to personal records in this blog and cannot assist you.

      To inquire about your benefits, you will need to contact your local office or call our toll-free number at 1-800-772-1213. Representatives are available Monday through Friday, between 7 a.m. and 7 p.m.

  38. Why was this not used for my son, when he went without SS for most of the time of his illness. Nobody ever told us about it. And now he is gone, and will not be able to to use this extra help. These diseases and disorders should be given to the patients before the end is so near.

  39. In March 2019 I was diagnosed with Spinocerebellar Ataxia 3. I struggle
    to work but it is becoming more and more difficult. I need a means to
    Pay my rent, food and living expenses. My frequent falls and mental depression
    continues to be a problem. So timely action in the way of Social Security benefits would be appreciated. My primary physician has forwarded the necessary medical information in my behalf.

    • Hi, Gikbert. For your security, we do not have access to private information in this venue. We ask that members in our Blog community work with our offices with specific questions. You can call us at 1-800-772-1213, Monday through Friday, between 7:00 a.m. and 7:00 p.m., for assistance. Generally, you will have a shorter wait if you call later in the day. You can also contact your local Social Security office. We hope this helps.

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